Exactly like the flu virus, only completely different


The flu virus changes every year, making it difficult to treat and meaning a different vaccine is needed yearly.

With ME/CFS and Fibromyalgia the treatment changes almost for every person, so different treatments and drugs have to be tried for every person to find one that helps.

And you get better from the flu, you don’t get better from what we have.

So in fact it’s completely different from the flu virus – my bad.

So how do you find a cure for something that affects those who suffer it so differently? There are so many stories of different drugs that ‘gave me my life back’ that it is impossible to engineer one cure for us all.

Of course I hope I am completely wrong.

There is of course one supplement that actually works for over ninety percent of us – cannabis oil. No THC so no high and therefore no possibility of addiction, but because of the word ‘cannabis’ it has more opposition than an Australian Prime Minister.

There is more than thirty years of science that proves it works, has no side affects and is not addictive. Had it been developed by a large pharmaceutical company it would already be on the shelf.

Unfortunately for the pharmaceutical companies they have no money invested in cannabis (to my knowledge) so they help form the ‘against’ argument – no profit, no health.

If I won the lottery I would start a business here in Australia producing cannabis oil and I would pay taxes, making the government a fortune and a few hundred thousand people feel human again.

Why is it so difficult?

Another new PM


So Australia has yet another Prime Minister, and just yesterday the same man pledged his full support for the guy he defeated today.

Unfortunately from the outside it looks like Malcolm Turnbull was never given a chance to be the Prime Minister he wanted to be. In fact in his own words he said keeping the party unified took a significant amount of his time.

That’s what we like to hear, that those working for us, the long forgotten electors who are paying their exhorbitant salary and benefits, are only getting around seventy percent of their attention. The rest is on keeping their jobs and undermining those above them so they can have their job.

If they were my employees they would be given an ultimatum. Either take a thirty percent reduction in salary or resign.

They say they are concerned about our significant cost of living increase over the last ten years, our wages not keeping up with real inflation, our ludicrously expensive electricity prices, our sick waiting months and sometimes years to be seen and our elderly and unemployed who have not had an increase in their social payments for thirty-five years.

Does anyone, anywhere, believe them anymore? No matter what side you voted for in the past ten years, they have changed leaders (and therefore PM’s) more than ever before and made us an international laughing stock.

Time and again we see their naked ambition, their ‘do anything’ attitude towards their own careers and their unbridled megalomania.

So why should we expect it to change?

I predict a non verdict in the next Federal election, whenever that may be. Parliament will be full of independents and small parties as we collectively give up on the self aggrandisement of the two major parties.

But then minorities have held governments to account before, one of whom was described by all who spoke to him as the most stupid person they had ever met.

Well I say their stupidity would probably be an improvement over what we have now.

For heaven’s sake, it could not be worse.

Big business rip-offs


Here in Australia we are at the tail end of a Royal Commission into our banking and superannuation sector.

Shock, horror, surprise, they were all ripping us off by charging excessive fees, charging fees for nothing, and cost us all thousands by not investing with our best interests at heart.

The penalties? Fines, with possible repayments to customers.

Here’s the thing. They gained billions of dollars and will have to pay back a couple of billion. Net result, billions in their pockets.

Why isn’t there a very simple law? Rip off your customers and you have to repay them double what you charged, and the onus is on the business to locate every affected customer or they pay back triple the amount.

Easy, simple and a deterrent large enough to make them think twice about expanding their bottom line at the expense of integrity.

It can apply to any business, large or small.

If these penalties are considered ‘excessive’ by anyone, please consider the hundreds, maybe thousands of people who lost their homes because of perverted financial advice born from greed.

Imagine having to pay back double the price of a lost home. How many times would this happen before behaviour changed?

Not many, I believe.

Quite simply, make the punishment fit the intention as well as the outcome of the crime.

Everything in life comes down to one thing – Timing


Well, alright, there are just a few more things involved, but for me timing is the most important.

I suppose it relates back to that ‘sliding doors’ moment. Had you not turned left when you got off the bus this morning and turned right instead, you might have bumped into the love of your life.

Depressing but a possibility.

But more to the point, I am referring to those who rave about how great they are because they made lots of money when they sold their house, or bought shares low and sold very high and gave their lives a freedom from financial woes that ninety percent of us go through each month (or at least every few months when the dreaded power bill arrives).

These people are not geniuses, they have not discovered the secret to the financial markets. Yes, they would like to think they have, and indeed tell us so, but no they haven’t.

How can I be so sure?

Do a quick search of the main so called ‘expert’ economists, financial ‘wizards’ and see what they wrote as their predictions at the beginning of last year. They are there for all to see. And the one common thread throughout? They are almost all completely wrong.

I saw one the other day, adamant that inflation would reach twenty percent by the end of last year in the US. I have seen others who predicted a major crash in China (which will no doubt occur one day but no-one knows exactly when).

Timing. It is like predicting an interest rate increase. If you predict one publicly and loudly and one actually occurs within a month you are an instant expert. You could have been predicting an increase every month for two years but because you finally got one right you know everything, right?

Wrong!

Or if you predict that the next Apple iPad will be a total flop, which very senior people have done every year since the first model was released, and that year you happen to be right, suddenly people think you know everything.

Sorry, but it was just a lucky guess.

The markets are mainly driven by emotion. Yes there are some facts in there that a very, very few can follow and predict how people will react, but no-one gets it right all the time. Not even Warren Buffett.

The vast majority get it utterly, completely wrong, especially now when our markets are so wildly unpredictable.

So the next time someone tells you of their great gain when they sold their property, think how lucky they were to find the one buyer who fell in love with it and had to have it. Or the shares that could easily have tanked because of a bad asparagus crop out of Croatia.

It is all timing. Yes some call it luck, and I suppose it is lucky to get the timing right, but I prefer simple timing.

So next time you get off the bus, walk a different way to work.

You never know.

Why are Tablets all 7-10 inches?? Yes, size does matter!!


And they wonder why overall tablet sales are declining!

Please, manufacturers, in much of the world we use A4 paper. All our documents are A4, our magazines, business documents and pretty much everything we want to read, without glasses like coke bottle bottoms, is in A4.

A4, for you are obviously unaware, is 14″ diagonally across.

Most of our phones are 5″ in size or over, so why would I pay up to $1,000 for a tablet only twice the size of my phone? Yes I know that measured diagonally it is actually more than twice, but I’m ranting here so give me a break.

Equally, the US market uses Letter (those funny people who refuse to go metric because it would somehow interfere with their masculinity, or something) so their Tablets should be 8.5″ x 11.5″.

Why is this so difficult??

If I walk into a meeting with all my documents on my tablet I do not want to spend my time apologising for the the small sized print and handing around magnifying glasses.

So give me a tablet that is the same size I have been looking at in business for the past several decades, not some small, so called ‘elegant’ sized tablet I can’t read because it was designed to “fit nicely in a small case or bag”.

Stuff the bag, that’s why I’m carrying a tablet, so I DON’T NEED a bag!

As always, either the entire world is bonkers or I am, and since I have been asking myself this question more often than not lately, it could go either way.

Am I crazy? People have said 14″ is too big for a tablet, but then they go into the newsagent and buy an A4 magazine to read.

And no, I don’t want a 14″ windows laptop. Windows is half my problem.

I have everything I need with the Google apps (which I protect like crazy and have three backups of, just because) such as spreadsheets, documents, presentations…all shrunk from A4 to make me feel blind, but it does fit into my jacket pocket.

That’s OK, I have arms, carrying one tablet (if it’s the right size!) is very doable.

If we have trouble describing our illness how can we expect others to understand it?


For my fellow sufferers of Fibromyalgia, ME and CFS we have a unique issue.

To all outward appearances we appear perfectly healthy, and yet, as I have explained in many previous posts, we are anything but.

I will spare regular readers the long list of ailments we suffer from. The main ones for us all are pain all over our body that never quits, dizziness, brain fog and devastating exhaustion.

I think this is enough for people to realise that we cannot be judged by how we appear. And yet many do.

Unfortunately if someone asks what we suffer from we cannot say ME or CFS (at least in my experience). Firstly they have no idea what ME is (say the full name and watch their eyes glaze over) and secondly mention CFS and you risk receiving “oh you’re one of those” looks. Everyone is tired in today’s world, and if you call it exhaustion people have difficulty making the distinction.

Fatigue, exhaustion, aren’t they the same? Well no actually. Fatigue means you are very tired whereas exhaustion for us is not being able to get out of bed, sometimes for days at a time.

Still, it doesn’t quite get through to them.

Fibromyalgia though, well that’s a lovely long and confusing word so it must be important, plus didn’t one of those pop stars cancel a tour because of it? But she’s alright now though isn’t she, so when are you getting better?

Hmmmmm….give us patience.

Telling people there is no cure still doesn’t seem to sink in, because the next time you see them you are usually greeted with, “Hey how are you feeling, any better yet?”

So, what part of ‘no cure’ did you not understand?

Actually, I believe it is our fault that we receive these reactions. If people do not understand them it is the message and the messenger that are failing, in my opinion. Harsh that might be, but I believe we need a simple, easy to understand explanation of our illness or we will never be understood.

Suggestions? Mine is rather simple and to the point.

“I have Fibromyalgia. Basically it means every nerve in my body has decided to tell my brain I am in excruciating pain 24/7, without any reason, and there is no break from this as no-one knows why it happens or how to fix it.”

I know this leaves out many of our symptoms, but I find it gets the message across. If they want more information then go for it, but in the interests of raising awareness for our condition I find it is a great place to start.

If we try to tell them everything they will remember nothing, so baby steps are required.

If you have a better response please, tell me so I can use it!

By the way, as a conversation starter and to add to the credibility of our condition, please visit The Awareness Store and get yourself a Fibromyalgia bracelet or necklace or, if you’re daring enough, a t-shirt! No, I receive no commission or benefits whatsoever, I just think they are a great idea and my wife and I wear their purple bracelet.

It’s a great conversation/awareness starter, and they can be found here.

No, were are not antisocial. Just chronically ill.


One of the biggest issues I encounter with family and friends is, “why don’t we see you much anymore? You have withdrawn yourself away from us?”

My standard response is, “I’m home 98% of the time so you know where I’ll be, just let me know before you pop in so I can try to look respectable or, worst case, ask you to please visit on another day.”

We are not withdrawing, in fact we crave contact with others. It is just that we often have no energy to hold up a conversation and it can take us days to recover from one.

Nothing personal. In fact we love you dearly and appreciate enormously your support and concern for us. You have no idea what that means in our daily struggles and we simply cannot tell you how grateful we are!!

So please understand we really want to see you, our lives are utterly boring without you, just let us know before you pop in.

Unfortunately many will still see this as you withdrawing and some will take it personally, but we need to put ourselves first or our condition will never improve.

We love seeing people, it makes us feel normal and is often the highlight of our day, we just have to be careful as to which day we choose.

Forgive us our daily absences, they are not an intentional barrier. We prefer human contact (as do we all), just don’t expect a tidy house or me in anything other than my PJs.

Most days we are silently screaming for a break in our boredom, so come on in, you know where we are, we’re not going anywhere!

Retired early due to chronic illness I now write about my illness & current events.

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