Horrendous full body pain, from head to toe, for years on end. You either come to terms with it, or it destroys you.
I have read research papers (yes published in A Class Journals for those of you who don’t listen to anything else and are therefore, to some extent, blinkered) that state the pain that fellow sufferers and I endure is very similar to the pain a cancer patient suffers during their final three months.
I even read an online post from the family of a woman who died suddenly. She had suffered our dreaded invisible Fibromyalgia and ME/CFS for many years but her sudden death was a mystery. After her autopsy it was revealed she was riddled with cancer, cancer that started many years after her Fibromyalgia and ME/CFS.
Her pain was so bad she did not even realise she had cancer, and died oblivious.
Why do we have to come out with these stories? Israeli medical research (and US, UK etc) has 30 years of proof that cannabis oil can and does ease our suffering, yet very little action is taken.
Our Federal politicians would say they are taking action, but progressing as slowly as possible is not action. It is only minutely better than nothing.
If cannabis oil had the same amount of research showing it helped cancer patients, it would have been widely available years ago. The hue and cry demanding it be made available would have been thunderous.
And yet because our illness is not visible, it has words that make people question it’s validity (Chronic Fatigue, really? Are you sure you don’t just need a good night’s sleep and some exercise??), and the oil that can help us is called ‘cannabis’, everyone in authority seems to not believe us. Or not want to.
I wish they could experience what we go through every day, but just for twenty-four hours. I wouldn’t want anyone to suffer more than that, I am not cruel by nature.
Then we would see access to what helps us open up in record time.
If they will not believe dozens and dozens of papers published over the past thirty plus years then perhaps they would believe their own pain receptors.
In the meantime we, their fellow human beings, continue in agony for years. The heads of medical associations do not believe these trials have conclusively proved the benefits of cannabis oil.
If that is the case, then perhaps they should learn how to read. But don’t ask me to teach them, because when you’re in this much pain, patience is very thin if non-existent.
In twenty years they will all be seen as fools. Which means I have to suffer for another twenty years?
Heaven help us all.