Why can’t we (ME/CFS sufferers) sleep???


The chronic illnesses we suffer from are usually the result of stress, anxiety or some nasty virus we had earlier in our lives. This results in us not being functional human beings during the day due to complete exhaustion and pain.

So you would think that our bodies would be eternally grateful to us each time we lie down at night, turn out the light and finally close our eyes for some much needed rest. The rest that our body has been craving all day.

But no.

As soon as it is time to go to bed we get all wired up (wired-tired) and are lucky to get just a few hours each night.

I personally have gone a whole night feeling so wired I was still awake when my wife went to work at 6.15am the following morning.

What the???

Our bodies demand rest, our doctors (the ones that understand us and actually believe we suffer from a real condition/s) tell us our chronic illness was probably caused by too much stress and we should sleep as much as possible. Yet at night time our bodies change their mind.

“Sleep? You don’t need sleep! Read a book for hours, just lie there with your eyes open (or shut, I don’t really care) but whatever you do DON’T FALL ASLEEP!!”

Am I exaggerating this? My own experience and, apparently, the experience of dozens of other people’s comments on social media, says the answer is a definite “No!”.

So our own bodies are filling us with false hope every day. It is exhausted it tells us, it needs a rest desperately it says, if only it was bedtime it moans.

Then we finally go to bed…and our bodies make us feel like we could run around the block and do 50 pushups afterwards! Well not really, it’s just the wired-tired feeling, I know there is no way I could run just one step let alone around the block. Anyway it’s dark out there, shouldn’t I be sleeping?

Either there is something seriously wrong with our internal wiring, or our bodies are playing cruel jokes on us.

What do you think? I would really like to know!

P.S. Please follow this blog. It is something that provides me with just a little sanity in my screwed up world. So it would be nice to know that more than ten people will read it. Your choice of course.

2 thoughts on “Why can’t we (ME/CFS sufferers) sleep???”

  1. I completely understand the tired/wired experience. My body is screaming for sleep but I just can’t. It is frustrating and completely counterproductive to our chronic illnesses. So sorry you experience this too.

    Liked by 1 person

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